Comments on: Is your MS fatigue caused or made worse by a sleeping disorder? http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder Hearing the Voice of MS Tue, 06 Dec 2011 17:03:09 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: kathibbetson http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-854 kathibbetson Mon, 28 Mar 2011 09:41:04 +0000 http://www.avoiceforms.com/?p=51#comment-854 OK, I note your concern. I have changed the front page of my blog to say that I am often not the originator and I have suggested that people ask for sources if I have not mentioned them. I am also now being very careful to mention all sources in every article. Sadly this often make the article cumbersome with more accreditations than content. It will take me a while to go back and update the earlier articles. and I may even chose to delete them rather than spend the time. After being hacked my whole set of articles were lost and many have to be rebuilt anyway so will deal with them as I come to them. OK, I note your concern. I have changed the front page of my blog to say that I am often not the originator and I have suggested that people ask for sources if I have not mentioned them.

I am also now being very careful to mention all sources in every article. Sadly this often make the article cumbersome with more accreditations than content.

It will take me a while to go back and update the earlier articles. and I may even chose to delete them rather than spend the time. After being hacked my whole set of articles were lost and many have to be rebuilt anyway so will deal with them as I come to them.

]]> By: Groovey http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-848 Groovey Sun, 27 Mar 2011 18:11:50 +0000 http://www.avoiceforms.com/?p=51#comment-848 Kath sorry it has taken me so long to get back to your post I received no notification of your reply.I know that people have spoken to you in the past about this subject and I will be honest on the day I posted I was angry and frustrated because there are so many people that seem to think it is okay to take articles from the internet without crediting the Authors or website it has been taken from.There are publishing and copy right issues that are there to protect Authors and this seems to be blatantly ignored. It might well be that you don't earn any money from any of this and it might be that you do this with good heart and honest intentions.But it is important and is a known copyright issue that you DO name the the Authors and credit those people who's words and thoughts you are using and to make sure that you have permission in some cases to use the articles at all,not all writers or websites are happy with the copy and pasting of their articles and especially not without acknowledgement. As an MS patient you are very knowledgeable and have personal experience which is valuable to the community and getting information to the MS community is an honourable thing to do,but it does have to be done within the copyrighting laws.I respect your efforts to want to help people. I think a disclaimer and a list of sources is the least that should be made. I was angry when I wrote because I know this has been bought up in the past and still no effort has been made to name sources.If for no other reason than to protect yourself from legal battles,it really is advisable to do. I apologize for my tone,it was not called for, however I feel very strongly about copyright issues and feel we all have a duty to respect them,especially on internet,so that we can all be given credit for our thoughts and words. I wish you the best. Kath sorry it has taken me so long to get back to your post I received no notification of your reply.I know that people have spoken to you in the past about this subject and I will be honest on the day I posted I was angry and frustrated because there are so many people that seem to think it is okay to take articles from the internet without crediting the Authors or website it has been taken from.There are publishing and copy right issues that are there to protect Authors and this seems to be blatantly ignored.

It might well be that you don’t earn any money from any of this and it might be that you do this with good heart and honest intentions.But it is important and is a known copyright issue that you DO name the the Authors and credit those people who’s words and thoughts you are using and to make sure that you have permission in some cases to use the articles at all,not all writers or websites are happy with the copy and pasting of their articles and especially not without acknowledgement.

As an MS patient you are very knowledgeable and have personal experience which is valuable to the community and getting information to the MS community is an honourable thing to do,but it does have to be done within the copyrighting laws.I respect your efforts to want to help people.

I think a disclaimer and a list of sources is the least that should be made.

I was angry when I wrote because I know this has been bought up in the past and still no effort has been made to name sources.If for no other reason than to protect yourself from legal battles,it really is advisable to do.

I apologize for my tone,it was not called for, however I feel very strongly about copyright issues and feel we all have a duty to respect them,especially on internet,so that we can all be given credit for our thoughts and words.

I wish you the best.

]]> By: kathibbetson http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-594 kathibbetson Wed, 09 Mar 2011 10:45:19 +0000 http://www.avoiceforms.com/?p=51#comment-594 Sorry you don't give your real name so I cannot use it. ( I'm sure you're not called Grovy) Yes you are right about some of my sources but some of these I have never seen so somebody else is sharing information. I never make any claim that my publications are "ORIGINAL RESEARCH" How could I, I am not working in clinical research. They are a collection of other publications which I stick together and often phrase in different ways. Often I state the sources eg <em>This article has been largely Adapted from Intimacy and Sexuality, issue six of the MSIF’s ‘MS in focus’ The content has been split over 3 articles. </em> when I do not it is more because a small article would be swamped by reams of acknowledgements. Most information around is not new but that doesn't mean that everyone has assimilated it. My role is to disseminate information not originate it. The originators will be pleased that more people hear their message. I am not making money out of doing this and do it only as a service to other people with MS. This is a devastating disease and the more we know and understand about it the better. I posted a question on my fan page as to whether this accusation of plagiarism was appropriate. In return I got numerous responses asking me to continue passing the information to them. Thank you for pointing this out as I'd hate people to think I was the font of all knowledge about MS. Sorry you don’t give your real name so I cannot use it. ( I’m sure you’re not called Grovy)
Yes you are right about some of my sources but some of these I have never seen so somebody else is sharing information.
I never make any claim that my publications are “ORIGINAL RESEARCH” How could I, I am not working in clinical research. They are a collection of other publications which I stick together and often phrase in different ways.
Often I state the sources eg
This article has been largely Adapted from Intimacy and Sexuality, issue six of the MSIF’s ‘MS in focus’ The content has been split over 3 articles.

when I do not it is more because a small article would be swamped by reams of acknowledgements.

Most information around is not new but that doesn’t mean that everyone has assimilated it.
My role is to disseminate information not originate it. The originators will be pleased that more people hear their message. I am not making money out of doing this and do it only as a service to other people with MS. This is a devastating disease and the more we know and understand about it the better.
I posted a question on my fan page as to whether this accusation of plagiarism was appropriate. In return I got numerous responses asking me to continue passing the information to them.
Thank you for pointing this out as I’d hate people to think I was the font of all knowledge about MS.

]]> By: Groovey http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-576 Groovey Tue, 08 Mar 2011 19:37:40 +0000 http://www.avoiceforms.com/?p=51#comment-576 Kath I have been reading several of your articles and it seems you have written very few of these articles yourself and yet you take credit for them all. At the very least you have skimmed from others,in some cases you have been blatant and in others you have made a few subtle changes but in all reality you are a rampant plagiarist! I will be enjoying passing onto the the authors whose articles you have skimmed and seeing how they react to the questionable use of their articles!! http://www.fortnet.org/NCMSN/0305.html http://www.msnz.org.nz/Page.aspx?pid=266 http://www.msif.org/en/about_ms/ms_by_topic/visual_problems/index.html http://www.auctiondaum.com/ausearch.asp?node=1256774 http://www.msnz.org.nz/Page.aspx?pid=272 Kath I have been reading several of your articles and it seems you have written very few of these articles yourself and yet you take credit for them all. At the very least you have skimmed from others,in some cases you have been blatant and in others you have made a few subtle changes but in all reality you are a rampant plagiarist! I will be enjoying passing onto the the authors whose articles you have skimmed and seeing how they react to the questionable use of their articles!!
http://www.fortnet.org/NCMSN/0305.html
http://www.msnz.org.nz/Page.aspx?pid=266
http://www.msif.org/en/about_m.....index.html
http://www.auctiondaum.com/aus.....de=1256774
http://www.msnz.org.nz/Page.aspx?pid=272

]]> By: Arleen Lero http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-438 Arleen Lero Wed, 02 Mar 2011 09:26:28 +0000 http://www.avoiceforms.com/?p=51#comment-438 Helpful pointers right here, I included your website with the best, hence stop by once again. Helpful pointers right here, I included your website with the best, hence stop by once again.

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]]> By: Natalya http://www.avoiceforms.com/ms-symptoms/sleep-disorder/is-your-ms-fatigue-caused-or-made-worse-by-a-sleeping-disorder#comment-420 Natalya Tue, 01 Mar 2011 20:14:57 +0000 http://www.avoiceforms.com/?p=51#comment-420 This can be such an issue - especially with the changing seasons. Thank you for the valuable information. This can be such an issue – especially with the changing seasons. Thank you for the valuable information.

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